Hi Friends

We are enjoying our last day at the beach here at Isle of Palms. Izzy has had a good week and enjoyed being with family around the clock. She has had her grandmother (GeeGee), Pop Pop, aunt Liz and Uncle Phil and Uncle John to help care for her and love on her for the last 6 days. She has not been as into the beach this year as she was last year but she has thoroughly enjoyed the pool here. We of course created an Izzy-room and she has so loved this room because there is a chair in it that she loves. Now we will be on the look out for a similar chair to put in her room at home.

It just took us about 45 minutes to get a beach picture on here...urgghh!! We have not been able to change pictures out on this CB site very well at all lately. It keeps rejecting pictures saying the format is wrong when we are downloading jpeg pictures???? Jimmy somehow got this one on so it may be here for a while. We have tons of pictures of her but have not been able to share them through this site.

Jimmy, my dad and I took Jay Jay and Izzy to the aquarium yesterday and Izzy was so quiet and meek the entire time. I think that she enjoyed it because she just likes to go places and see things but she has not been very expressive lately. The smiles are harder and harder to get these days. She definitely sleeps better now at night and now sometimes naps during the day but she seems "less present" at times which is sometimes hard for us to accept emotionally. We do get to hold her more now and she is calmer and quieter to go places in public but the trade off seems to be that she is less alert and responsive..such a catch 22. Maybe this is just another phase and she will get back to being more expressive again???

Izzy did have a seizure here our second night at the beach. It was about 7 minutes long and we gave her 15mg of diastat but then she went on to have milder seizure activity for up to 40 minutes after the "active seizure" period. She slept a lot the following day.

Izzy will start school Aug 20 which will be here before we know it. I have not shared on this site how excited we are to have her in KELLY'S class at a new school. Yes "our Kelly" will be her teacher this year. As God has done in the past, He continues to bless us with Izzy's school situation.

Please pray for her one-on-one as they have not yet hired someone for this position. Mary Marshall will be a full-time nursing student this year and unable to be her one-on-one.

Thanks for checking on Izzy. She is sweeter than ever and truly an angel in our lives. God Bless, Leslie