UPDATE 8/28/08: Izzy's swallow study results were awesome, praise God!!!

Kicking With Izzy was a great event raising over $2,000 for the Foundation. Thank you to everyone who came out to support IJF, Winthrop, and/or Clemson. Our family was torn on which team to pull for as we are both Eagles and Tigers, so a 0/0 preseason score was fine by us. We are blessed to have dedicated supporters who try to make every fundraing event. It means so much to us. We are a small foundation, mostly run by Jimmy and I, and we must balance the needs of our medically fragile child, our family and our marriage. We are so blessed to be a part of God's work through Izzy's life and pray that we can pace ourselfs and find the right balance in all of this.

One of my best friends Dana got married on Saturday (and I was in the bridal party) so it was very busy weekend for us since Kicking with Izzy was on Sunday. I hope you are enjoying the sun and sand of Mexico Dana and Michael....wish we were there.

Jimmy's cousin Nick and his wife Tonia had there 4th child exactly one week ago. Little Olivia remains the reigning Princessa Delgado as "surprise baby" turned out to be a boy. We are loving having them living closer to us and getting to enjoy them and their children in our lives.

Izzy is having a swallow study in the morning. This is to determine if she is aspirating any fluids into her trachea (airway) and also to monitor the quality of her chewing and swallowing of various foods and liquids. She gave us quite a scare last week when she started choking (not sure if there was an object or just saliva/phlegm) for about 10 minutes. She was at my mom and dad's house b/c they were keeping her while I was at work. She was in her "safe room" there and my mom had just checked on her about 5 minutes before and she was sound asleep. When my returned she found her gasping and choking. we never found evidence of an object being swallowed and nothing appeared in her diapers. My parents called 911 and by the time they arrived she was having less trouble.

So please say a prayer that she is not aspirating. If she is we will most likely need to take her off thin liquids and discuss future g-tube placement. My gut tells me she is not, what do I know?

Izzy continues to enjoy school and loves having "her Kelly" as her teacher. Thank GOD for Kristin and Kelly!!!!! They have been angels in loving and caring for our baby girl.

We continue to be surrounded by our amazing family who supports us through everything. I know that this journey has been especially difficult for my parents and my brother and sister as they love Izzy so much and hate to see her losing skills and developing new medical issues. Through it all they love her unconditionally, mostly laugh when they feel like crying and listen to me when vent when I am at my wits end with this disease.